Things I’m Excited For When In Remission!

Hey everyone!

I’m writing this post sat in hospital having my first infusion of Infliximab (otherwise known as Remicade) which is a biological treatment for Inflammatory Bowel Disease. I got diagnosed with this in April 2017 and Infliximab will be the 5th treatment I am trialling to get myself into remission so I can hopefully live as close to a normal life as possible.

I’ve tried my absolute best to stay positive throughout this new path my life has decided to take so I thought I’d write about the things I’m really looking forward to doing when I eventually am in a state where I don’t have any symptoms of the disease anymore. Whether that be from medication or surgery I don’t know but I know I’ll get there somehow. Remission is hopefully coming soon. Here are a few things I’ll be super happy to do again…

Being Able To Work
I bet there are so many people reading this like “how can someone be EXCITED to go back to work?!”. When you’ve been pretty much stuck in your house and on your own the majority of the time, you really do run out of things to do, fast – especially when you feel so unwell. I’ve been unable to work since July 2017 and my god am I bored and fed up of it. I’m really excited to have a routine again, to have daily interaction with different people again, to earn some money and have something to focus on. Although I am also really nervous about it, I’m sure I’ll slip back into it easily with good support.
Drinking and Going Out With My Friends

I’ve never been much of a drinker or a major party girl but I do really miss the occasional night out with my friends. It’s been over a year since I’ve been well enough in any shape or form to go out or have more than 2 drinks. I miss getting dressed up and dancing to cheesy music with my best pals, feeling carefree for a night and like I am infact 21 and not 40 odd. Spending my days in bed, taking daily medication to keep my body moderately stable and feeling a heavy responsibility that every single thing I do/eat/drink could mess with my health doesn’t exactly scream “early 20’s and living my best life”, does it?

Exercise

The most intense exercise I’ve been able to do since being ill is walking my dog up a hill. I really miss the gym and working out. Even though I’ve always been pretty curvy I do actually enjoy exercise and was quite fit and healthy before being diagnosed. With my issues being all around my abdominal area, I can’t really do any sort of exercise around that area without causing myself more pain or triggering my illness. So it’s safe to say remission has me excited to get back to being able to work out.

Less Hospital/Doctors Visits

I HATE HOSPITALS. I mean for real, who likes them? But man am I excited to spend less time at them. I’m quite a fussy hygienic person and I know hospitals are meant to be super clean but I’m still very skeptical about all the germs and bugs around. The fact that I’m on immunosuppressants makes it worse too as it’s so much easier for me to pick illnesses up. I also have a phobia of vomit so I’d like to stay away from any cases of that as much as possible.

Making Future Plans With Jake

The past year has been a super tough one but they do say every cloud has a silver lining. Jake and I are closer and stronger than ever and we will be celebrating half a decade as a couple this year. I’m so damn excited to take the next steps in our relationship as so much of it has been put on hold due to my illness. Moving in together is something we’ve been wanting for a long time and as soon as I get into remission and we can both start saving for it, it is happening. I’m also really looking forward to travelling more and seeing the world together. I’m just generally really happy and cannot wait to see what our future holds as a couple.

There you have it. Obviously there are many more things I am looking forward to, big and small (including getting more tattoos but shh). These are my top ones for now though. They might sound really simple and it’s because they are. I’m honestly mostly just looking forward to hopefully becoming a normal, functioning human being again. I couldn’t ask for anything more right now than to live a normal life. If you enjoy posts like this/about my illness please let me know as I always wonder whether people find them boring or interesting.

’Til Next Time,
BTB Xx

30 Comments Add yours

  1. Melanie says:

    What a fantastic post ❤️ I have everything crossed for you that you will soon be checking things off this list and getting things back to a semblance of normality. Although nowhere near what you have been through I was house bound for months with slipped discs and it really makes you realise how you take things for granted when you are fit and well. It has completely changed my mindset and how I live my life. Thank you for sharing 😃 ps I love your girl power trousers !!!!

    Melanie | http://www.frasersfunhouse.com

  2. cloudyems says:

    Such a positive post! Really hoping you’re able to forfil these goals very soon x

  3. Charlotte says:

    Wow. This is such an inspirational and positive post. So amazing to see how positive you’re being and I’m sure you’ll be ticking all these things off the list in no time. I’m so excited to see what the future holds for you my lovely and I’m sending you nothing but positivity and love all the way through!

    Charlotte | https://fadingtulips.blogspot.co.uk

  4. Wow what an honest and inspiring post. Thank you for sharing your story I’m sure you’ve helped people. Best of luck will keep following!x

    1. blacktulipbeauty says:

      Thank you, I really do hope so! X

  5. Lauren says:

    Such a positive post – looks like you’ve had a difficult time but you’re still so up beat! Fingers crossed you’ll be checking every thing off VERY quickly xx

    1. blacktulipbeauty says:

      I really try my best to stay positive, you can never tell what life is going to throw at you so it could be worse! Thank you 🙂 Xx

  6. Annie says:

    The positivity you show in this post is really admirable. It’s great that you have these things to look forward to. Thank you for sharing this with us. You’re truly an inspiration!

    1. blacktulipbeauty says:

      Thank you very much for your kind words 🙂

  7. Perrine says:

    Great goals 🙂 And I understand for “getting back to work”, nothing worse than having to stay at home all day, each day of the week! I hope you can tick those boxes soon! 🙂

    Perrine
    http://www.ola-banana.com

    1. blacktulipbeauty says:

      Thanks so much 🙂 I am excited to have that general routine again and a normal life! X

  8. What a great moving post. I totally agree with you. These are all great things to look out for and it is great that have some things to look forward to! xx corinne

    1. blacktulipbeauty says:

      Thanks 🙂 X

  9. Gabrielle says:

    This is such a great post Alice! Although I’m not going through the same thing as you, I can’t wait to be healthier and to function like a normal human – I’ve spent a lot of the last year holed up at home (a lot of time off work so deffo feel you there!) and wish you all the best with your treatment! And also excited to see what tattoos you’re going to get 😉❤️❤️

    1. blacktulipbeauty says:

      Thanks girl 🙂 I hope you get back to normal soon too! I cannot WAIT to get more tattoos hehe!! Xx

  10. Hi!
    I hope this treatment works for you! I can understand the wanting to go back to work. Staying at home for a long time can really take a toll on you & make you go a wee crazy haha.

    #MayTheForceBeWithYou ! 🧡

    1. blacktulipbeauty says:

      Thanks so much 🙂 oh god yeah it really can! Being alone so much really can feel so isolating! X

  11. This was such a lovely and positive post! I really hope this form of treatment works for you and you can get back to living life on your own terms again. 5th time lucky? It’s so easy to say you don’t want to work or work out or are glad to stay at home but it’s absolutely awful if you don’t have a choice! Sending you all the positive vibes. Let us know how it goes! x

    Sophie
    http://www.glowsteady.co.uk

    1. blacktulipbeauty says:

      Thank you so much 🙂 I really hope so! I will definitely be doing a massive WOOHOO post if things start to go well haha! X

  12. I’m so excited for you to be able to do all of these things again one day soon! I can only imagine how excited you are!! Sending positivity and well wishes your way girl 🙂 xo

    Char | http://www.charslittleblog.co.uk

  13. Ashton says:

    I am thinking about you during this time. I hope that it helps and you can have a future filled with excitement and little pain.

  14. Meg says:

    Aw! Well done for sharing this Alice. <3
    Great post, and good to have things to look forward to! xxx

  15. Sophie says:

    This is such a positive post! So many things for you to look forward to, I absolutely despise hospitals as well so I’m sorry that you’ve had to spend time at them but at least it looks like all the trips have been worthwhile!- https://sophiehearts.net x

  16. Alice says:

    I’m keeping everything crossed that this new treatment works for you, I can’t wait to see you super happy and totally loving life! All of us Blogger Babes will definitely need to meet up and all go out, get drunk and go dancing. Sending all my luck and positivity to you as always xx

    Alice | http://www.accordingtoalicex.com

  17. Anu says:

    I really hope that this treatment works for you lovely and that you’ll be able to do all the things you enjoy as soon as possible! If you feel comfortable sharing more posts like this I’d definitely like to read them 🙂 x

    Anu | Based On blog

    1. blacktulipbeauty says:

      Thank you so much 🙂 I have some more planned for the near future! X

  18. Julia says:

    Well done for focusing on the positives! You’ve got so much to look forward to. I hope everything works out for you and soon we’ll get to read about you moving in with your boyfriend and all the incredible adventures you will have! Fingers crossed for you!

    Julia xx
    theglassofclass.com

  19. Gemma says:

    This is such a lovely post! You’ve got so much to look forward to and I’m glad you’re focusing on the positives to push through this. I have everything crossed that things works out for youu. I love posts like this as I suppose it helps yourself but people who read this that might be going through the same. I know you can do this and I’m excited for the future for you.

    Gemma | http://www.anoceanglimmer.wordpress.com

  20. If ever you need to talk I am always here! Thank you so much for sharing this too! Ive struggled for so long not being able to work full time-having to leave uni- and its generally just rubbish feeling ill all the time! Im going back to full time work next week and Im so excited!!

    I really hope you get well soon lovely and can start dong everything you love again <3

    Emily

    http://www.isobellejane.com

  21. Leslie says:

    I’m so glad that you are looking at all the positives! I am so hoping this treatment works for you girl!

Leave Me A Comment!

This site uses Akismet to reduce spam. Learn how your comment data is processed.